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LYMEPOLICYWONK: LymeDisease.org responds to Slate’s “Lyme-Illiterate” article
LDo Letter to the Editor of Slate December 12, 2014 Julia Turner Editor in Chief juliaturneratslate@gmail.com Re: Lyme Illiterate by Brian Palmer LymeDisease.org is appalled at the recent Slate...
View ArticleLYMEPOLICYWONK: Two Standards of Care Revisited: Should Lyme Patients Have A...
Over 10 years ago, I wrote a piece called Two Standards of Care that explained the different approaches to treating Lyme disease, why the controversy exists, and what patients want. A lot has changed....
View ArticleThe FDA and Lyme Disease Testing—FDA is Listening, but Does it Matter?
The agency wants to require FDA authorization for laboratory developed tests which are currently overseen by CLIA (Clinical Laboratory Improvement Amendments) and CMS (Centers for Medicare &...
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LYMEPOLICYWONK: The IDSA chooses a token patient for its new guidelines...
Theoretically, medicine holds the interests of the patient paramount. However, sometimes the people developing guidelines have a different goal in mind, placing commercial or professional interests...
View ArticleLYMEPOLICYWONK: IDSA Guidelines Revision Process–Cause for alarm?
Unless the IDSA’s process has integrity, this will turn out badly for Lyme patients. And the IDSA’s process already appears to lack integrity. Why do I say this? Because, if the right people are not...
View ArticleLYMEPOLICYWONK: IDSA Guidelines Survey
We will present these in our formal comment submission to the IDSA on April 9th and to help promote patient interests in Lyme disease legislation and healthcare policymaking. Today patients struggle...
View ArticleLYMEPOLICYWONK: LymeDisease.org and Lyme Disease Association file comments...
On March 9, 2015, the Infectious Diseases Society of America announced that it will update its Lyme disease guidelines. The IDSA provided a 30-day window for the public to comment on its guideline...
View ArticleLYMEPOLICYWONK: Deadline extended; you can still comment on IDSA
LymeDisease.org and the national Lyme Disease Association filed comments on behalf of 67 Lyme advocacy groups. Here are our conclusions: The current Plan fails to provide the type of process integrity...
View ArticleLymePolicyWonk: IDSA Lyme disease survey results out! What’s important to...
I encourage you to read the survey results and let me know your thoughts. We included a link to them in our initial post to the IDSA, which we made in conjunction with the LDA and 67 other patient...
View ArticleLYMEPOLICYWONK: I add my thoughts to AEON Lyme disease discussion; you can too!
If you want to join in, just post your comments here. Part of my contribution to the discussion is below. Lyme disease: Who’s right, who’s wrong, and who decides. In Dr. Elizabeth Maloney’s view...
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